I’ve always tried to do my best to thrive with my condition…even before I knew that’s what I was doing. I have never wanted my condition to slow me down. I want to go full steam all the time. Being there the best way I know how for everybody who matters to me is important.
I had pneumonia in August of 2016. At the time, my doctor and I discovered that my lungs are sensitive. This means I have to pay attention to how my lungs feel when I get sick. In early January, I woke up and my right eye was swollen shut. It’s hard to drive a powerchair
I think of all of you as creating a community with me. Therefore, we’re going to use a whole lot of together to get through these uncertain times, well. How do I propose we do that? be extraordinarily kind to everyone: we’re all adjusting to our new normal, so we need to be kind to
I am feeling better. The second round of antibiotics are doing their job. I take them three times a day with food, so I don’t throw up. I find small meals work best. I try to keep the meals healthy. My new joystick is wonderful. It’s great to have multiple speeds and pinpoint control, again.
Self-care is so hard for everybody. However, for me: It’s the hardest challenge I deal with on a daily basis. I deal with many challenges, but self care out challenges them all. Why? It’s directly connected to every other challenge. Here’s what I am & I freely admit all this now. Doing so is a
I was going to blog about something from my ever-growing list of ideas on my computer, then last night happened. This is my most raw, honest, blog to date. As this journey continues: I’m sure I’ll feel led to change my plan. This blog, my journey, my life is in God’s hands, always. It usually
When I was born I had pneumonia in both lungs. My lungs were very much fine, which isn’t always the case for people who have CP, for a long time. I say were because three years ago, I got pneumonia for the second time in my life. I’m not going to lie, it was very